I have been fighting this for over 2 years. After awhile it gets quit tiresome. On Wednesday night we made a unplanned visit to the hospital because I had thrown up. They kept me over night and hydrated me. By morning they had pumped me so full of fluids my face was puffy. At 10 A. M. the nurse came in and said I was free but they wanted me on home I.V fluids ( I really hate home fluids) I have to carry around this big bag of fluids everywhere i go. But it meant I got to go home which I desperately wanted. So we are waiting around and 1 rolls around then it turns to 2 then to 3 then to 4 and finally to 5. We are getting a little antsy to get out by now. Finally the coordinating nurse comes in and tells us that are insurance denied the order and refused to pay so they had to find a place that would mix them and insurance would cooperate. So long story short it takes 2 hours for the fluids to be mixed and they had to come from moline to Peoria. So the doctor came in and said we could just go home and the fluids would come to the house directly. So then we had to have home heath care come and hook me up and take my blood pressure and temperature and listen to me breath. Trust me its not fun. So as I lay around listening to Kari Jobe I feel very grateful to have doctors and parents and friends and family who care. Tomorrow will be our THIRD attempt to leave for Memphis. This will be course 9 and we have a full year from right now. I also have to have an MRI, CT scan, and Echo EKG when I am down there. On the plus side the temperature in Memphis this week is in the 60's with lows of 50's!! Bring out the Capri's!! I still have to pack and I have home heath coming to de access me which just means pull the need out of my port. Well I will try to blog again on Wednesday.
Sunday, January 29, 2012
Wednesday, January 11, 2012
A visit from strangers!
Today I got a visit from a very special person. In this picture are a couple from Canada that have been following my caringbridge since the beginning. They are traveling to Georgia to see family but on their way they wanted to stop and meet ME! I sometimes feel like a celebrity! But you have to understand sometimes it feels really overwhelming. But this mornings visit was very nice. When someone has been following you and your progress for 2 years that is dedication and I am very happy I got the opportunity to meet this very net lady. I also wanted to talk a little bit of what I want to come out of this blog. I want to use this blog one for connecting with my classmates and so they can get a little idea for what its like to be in my shoes but also I would like to use this for questions anyone has and a place for you to leave me messages and stuff about what is going on in school. So here it goes...
Day 1- Today has been a pretty good day so far (its only 11:45). This blog thing might actually be a good thing:) We will see! You will probably learn a lot about me that you didn't know. I tend to put on a good act ( I'm very good at making a bad day look like a good day). Today I shall read huckfinn!! I'm not really looking forward to it! I also have to study for my earth science test we will see what I get done...
Day 1- Today has been a pretty good day so far (its only 11:45). This blog thing might actually be a good thing:) We will see! You will probably learn a lot about me that you didn't know. I tend to put on a good act ( I'm very good at making a bad day look like a good day). Today I shall read huckfinn!! I'm not really looking forward to it! I also have to study for my earth science test we will see what I get done...
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